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April 8, 2026

Office of Personnel Management demanded prescription and diagnosis records for 8 million federal workers

KFF Health News
CNN
Democracy Forward
Federal Register
Fedscoop

Sixty-five insurers were ordered to hand over every federal employee's prescriptions, diagnoses, and claims going back years

On December 12, 2025, OPM Director Scott Kupor's agency , ordering all 65 Federal Employees Health Benefits and Postal Service Health Benefits insurers to submit monthly identifiable health records for every enrolled member. The notice asks carriers to furnish medical claims with diagnoses and treatments, pharmacy claims showing which prescriptions people fill, encounter data, and provider records. It doesn't require insurers to redact names, birth dates, or other personal identifiers before submitting the data.

OPM claims authority under HIPAA section 45 CFR 164.512(d)(1), the exception allowing disclosures to "health oversight agencies," but doesn't explain what specific oversight purpose requires unredacted health records on millions of Americans. Jodi Daniel, a partner at Wilson Sonsini who at HHS, said the notice "seems quite broad and encompasses potentially a lot of information and data and is sort of light on justification." She wrote the rules OPM is now using as cover.

The plans cover , including active federal civil servants, retirees, retired members of Congress, US Postal Service employees, mail carriers, and all of their immediate families. The 65 insurers include major carriers like CVS Health, which owns Aetna, United Healthcare, and Blue Cross plans. The Association of Federal Health Organizations represents all 65 carriers.

HIPAA's "minimum necessary" standard requires agencies to limit data collection to what's specifically needed for an articulated purpose. OPM's notice doesn't state a specific purpose. Jodi Daniel, one of the nation's first digital health lawyers, said the language "encompasses potentially a lot of information." That gap is what insurers and privacy experts have identified as the core legal problem with the request.

CVS Health executive Melissa Schulman arguing that "OPM's request raises substantial HIPAA compliance issues." Schulman said federal law allows OPM to "examine records but not to collect data" and warned that providing personal health information for OPM's "vague and broad general purposes" would break federal law. She said insurers could face liability if "consumer health information is inappropriately shared and outside of our control."

Kari Parsons, chair of the Association of Federal Health Organizations, led filed before the February 10, 2026 deadline. Parsons argued that federal law requires carriers to furnish "reasonable reports OPM determines to be necessary," not individual-level claims data with personal identifiers attached. AFHO represents all 65 carriers whose compliance is at stake.

OPM that prompted the same HIPAA objections from insurers. After years of negotiations, OPM and carriers discussed but never finalized a 2019 agreement for carriers to share de-identified data. The December 2025 notice is a significant escalation. It moves from voluntary, negotiated collection of anonymized data to a formal, mandatory monthly reporting requirement for identifiable health records across all 65 carriers simultaneously.

OPM already operates a Health Claims Data Warehouse containing medical claims, pharmacy information, enrollment data, and provider records for FEHB enrollees. The legal basis for the warehouse's data collection has never been publicly clarified. The new notice would dramatically expand what has been an informal system into a formalized monthly pipeline of unredacted personal health data.

Privacy experts raised alarms about potential misuse, particularly in the context of the Trump administration's mass federal layoffs. With federal employment down 355,000 from its October 2024 peak โ€” an 11.8 percent decline confirmed by โ€” identifiable health data could be used to flag employees based on medical conditions, mental health treatment, or prescriptions. OPM's 2015 data breach, attributed to Chinese government hackers, personnel and security clearance records.

Civil Service Strong, a Democracy Forward project, arguing the request violates both HIPAA's minimum necessary standard and the Privacy Act of 1974's requirement that agencies maintain only information "relevant or necessary" to a stated purpose. Their analysis found OPM provided no assurance it won't share collected health data with other agencies. Separately, a federal court allowed a Privacy Act lawsuit against DOGE and OPM to advance to discovery in early 2026, over DOGE personnel's access to OPM systems.

KFF Health News , reporting on a Federal Register notice that had been publicly available for four months without congressional comment. The House Oversight Committee, chaired by Rep. James Comer (R-KY), and the Senate Homeland Security and Governmental Affairs Committee both have jurisdiction over OPM and the authority to demand answers about the agency's legal justification and data security plans. Neither committee had scheduled a hearing on the notice as of April 8.

The administration has separately reclassified civil servants to make them easier to fire, eliminated diversity offices, conducted mass layoffs across federal agencies, and, through DOGE, accessed federal employee databases in ways courts have found raise Privacy Act concerns. Michael Martinez, a senior counsel at Democracy Forward who formerly worked at OPM, noted those actions alongside the new medical records request in formal comments, writing that an OPM with access to health data, workforce data, and disciplinary authority over 8 million employees would hold an unprecedented concentration of personal information about the federal workforce.

Scott Kupor became OPM director on July 14, 2025, after serving as managing partner at the venture capital firm Andreessen Horowitz. During his Senate confirmation hearing, and data protection practices at OPM and told senators worried about DOGE's access to federal records that he'd protect workers' data. He said DOGE workers weren't currently accessing OPM systems. Five months later, his agency published the Federal Register notice demanding identifiable medical records from 65 insurers for more than 8 million people.

Kupor's agency hasn't published a final rule since the comment period closed February 10, 2026. It hasn't withdrawn the notice either. That leaves 65 insurance companies waiting to find out whether they'll be legally required to hand over millions of Americans' unredacted medical histories to the same agency that lost 22 million personnel files to hackers a decade ago.

OPM says it needs the data to oversee FEHB and PSHB plans and control costs โ€” but that stated rationale appears nowhere in the Federal Register notice itself. The notice was filed as a , a lighter regulatory process that doesn't require the formal notice-and-comment rulemaking that major agency rules demand. That procedural choice let the request advance with less public scrutiny than a standard rulemaking would have triggered.

Michael Martinez, a senior counsel at Democracy Forward who formerly worked at OPM, raised a specific concern about which employees the data could target. He said: "You can anticipate a scenario where this information on 8 million Americans is now in the hands of OPM and there's a real concern of how they use it." Martinez specifically flagged workers who sought abortions and those who received transgender medical care โ€” two categories the Trump administration has separately moved to restrict. Sharona Hoffman, a health law professor at Case Western Reserve University, that encounter data could give OPM access to "anything and everything," including doctor's notes and after-visit summaries, and warned the agency could use the information "to discipline or target people who are not cooperating politically."

๐Ÿ›๏ธGovernmentโœŠCivil Rights๐Ÿ”’Digital Rights๐ŸฅPublic Health

People, bills, and sources

Jodi Daniel

Partner, Wilson Sonsini Goodrich & Rosati; former HHS digital health policy lead

Melissa Schulman

Executive, CVS Health

Kari Parsons

Chair, Association of Federal Health Organizations

Scott Kupor

Director, Office of Personnel Management (sworn in July 14, 2025); former managing partner, Andreessen Horowitz

Civil Service Strong / Democracy Forward

Watchdog organization; Democracy Forward project

Rep. James Comer

Chair, House Oversight Committee (R-KY)

Sharona Hoffman

Health law professor, Case Western Reserve University School of Law

Michael Martinez

Senior Counsel, Democracy Forward; former OPM employee

Jonathan Foley

Former OPM employee

What you can do

1

civic action

Contact your representative about OPM's health data collection

The House Oversight Committee has jurisdiction over OPM. Members need to know constituents are concerned about the government collecting identifiable medical records of 8 million people.

I'm calling about a Federal Register notice from OPM that would require 65 insurance companies to provide identifiable medical records, including prescriptions and diagnoses, for 8 million federal workers and their families. OPM suffered a massive data breach in 2015 affecting 22 million people. I want Representative [Name] to demand answers from OPM about how this data will be protected and what legal authority they have to collect it.

2

civic action

Submit a FOIA request to OPM about the health data collection program

OPM's notice was published in the Federal Register but received little public attention for four months. Freedom of Information Act requests can reveal internal communications about the program's purpose.

I am submitting a Freedom of Information Act request for the following records: all internal communications between OPM leadership and the White House regarding Federal Register notice 3206-NEW, published December 12, 2025, requiring federal health insurers to submit identifiable medical records for FEHB and PSHB enrollees. I am also requesting all legal opinions or memoranda prepared by OPM's Office of General Counsel regarding the agency's HIPAA authority for this collection. Please provide responsive records within the statutory 20-business-day period.

3

civic action

If you're a federal employee, learn about your privacy rights under the Privacy Act

The Privacy Act of 1974 gives federal employees rights to access records about themselves, know about disclosures, and amend inaccurate records. Understanding these rights is critical if OPM begins collecting identifiable health data.

Hello, I am a federal employee calling about my rights under the Privacy Act of 1974 in connection with OPM's December 2025 Federal Register notice requiring health insurers to submit my identifiable medical records to OPM. I would like to know: what specific records OPM currently holds about me, whether my health data will be shared with other agencies including DOGE-affiliated offices, and what security safeguards will protect that data given OPM's 2015 breach affecting 22 million people. I am invoking my right under 5 U.S.C. ยง 552a to access and amend records about myself.